PDL Treatments #13-17

Yes...delayed this post about 6 weeks because, whelp taking care of two girls is just busy busy busy.  I am trying to keep this up as best I can so I have something to look back on when Sloane is older.  Our dermatologist said it's always nice when they get older and are having trouble with their birthmark to have a "Birthmark book."  I'm certainly not writing a book, so this is the best Sloane will get.  So here I go...

Just when we thought things were done...our Dermatology follow up in February 2017 showed some growth in our short 6 week break.  Our dermatologist mentioned again that the most aggressive treatment shows the best long term effects and is best when finished before the age of 2 years old.  At least that's what I remember.  So we started back up again in March 2017 and did 5 treatments ending the last day of June.  Our dermatologist took a 5 month sabbatical so we got a nice long break over the summer to enjoy no doctors appointments.  Sadly over that time there was continued (yet minimal) growth and we restarted again in November.  

Since Sloane's last treatment in June was pretty bad now that she's older and more aware of whats going on, we decided to do general anesthesia to get a better treatment and more focus on the eye area to help minimize the damage that could be done to the optic nerve as the vessels grow.  

That treatment in the beginning of November went great, she tried to lick the inside of the anesthesia mask and thought the hospital was so much fun with her new best friend Ms. Veronica.  She woke up slowly, much better than her sister when she had versed, but still was feisty once she realized what was going on.  A few weeks between this treatment and the next, Sloane had her seizure episode.  I mentioned in my last post about her treatments, that we were cleared by neurology but since this occurred we get to see them every 3 months.  In December, we were cleared from neurology to continue with treatment as we learned that her port wine statin and seizures were unrelated.  This last and hopefully final (this time better be for real) treatment was tricky as we were coordinating with ophthalmology to get a good visualization of her optic nerve to see if damage had been done.  Sloane had a narly little cough that we were canceled from surgery the beginning of December, but then rescheduled the week before Christmas, getting our Christmas miracle.  We got great news that the optic nerve is un-damaged and this last treatment miiiiight be the end.  Our dermatologist said more treatments may not show much more improvement and to be honest with you....it looks AMAZING and you can barely see it.  We will continue to follow up with ophthalmology every 6 months since the vasculature behind the eye can change at any time.  We don't see ophthalmology and dermatology until JUNE!!!  And we will find out what Neurology says when we go back to see them the March 1.